There are some people that are meant to come into your life, no matter how your paths cross. Two years ago I met Linda at Zumba class. Instantly we became friends and connected in class as well as in social circles and social media. It was through various postings about Joan’s Monarch Wishes on my FB that Linda came to know my story and efforts to help others living with cancer and I came to know hers. Linda is a young at heart, funny, soon-to-be 58 year old wife, sister, aunt and friend who is approaching her 5 year milestone of being a breast cancer survivor! In her own words, below is Linda’s honest, emotional and heartfelt look back on her journey through the challenges and raw emotions from diagnosis to celebration. I hope that it touches you, helps you and you will pass it on to others in your life who are battling cancer or are helping a loved one get through.
Linda celebrating her good news from her doctor. 5 years cancer free this month!
By Linda DiAlfonso
The day of the discovery will always remain vivid in my mind. I remember the technician coming into the room after I got dressed saying “we found something and you should call your doctor right away”. I remember feeling like the wind had gotten sucked out of me as I walked to my car and sat in the parking lot stunned. Then I called my husband and broke down. I was shocked but not shocked. I always had dense breasts with fibroids so hearing it was shocking. But not shocked because even though breast cancer doesn’t run in my family, other forms of cancer do. I immediately went into survival mode right there in the parking lot by making appointments. It was a whirlwind of seeing doctors, getting that additional opinion, letting family, friends and work know, making that almost impossible decision about my path for reconstruction, etc. I was terrified because I had seen both parents suffer with different forms of cancer, which my mother died from. I didn’t feel sick so it was surreal. Hearing the words “you have a disease – you have cancer”, “you must have it removed”, “you must do chemo”, “you will lose your hair”, “you can’t go to Italy” all terrified me. I felt angry about the hair and Italy trip. I remember saying to my surgeon “so you’re telling me that I am going to lose my fucking hair and I can’t go to Italy?” I was pissed but I had no choice, I had to fight. It became very clear early on in my journey that those things really became insignificant. All I knew is that I had a long journey ahead of me but my prognosis for survival was good and that made me hopeful.
I was diagnosed with left breast ductal carcinoma in situ with lymphatic invasion – stage 2. It was found on my mammogram in March 2010, which I have always been religious about going to. Thank God. I was diagnosed in April 2010 by Hunterdon Medical Center with a backup by Fox Chase. I got a 3rd opinion at Sloan Kettering. All sources agreed on the diagnosis and procedure of a mastectomy and then chemotherapy. I elected to only have the left breast removed with a tram flap reconstruction, which was done May 11th.
I began chemotherapy in the middle of June and received 4 rounds of a cocktail of Adriamycin and Cytoxan followed by 12 rounds of Taxol. I am currently into my 5th year of Tamoxifen. It is possible that I will continue with a different drug when I am done with it.
It was a 7 ½ month span of time from my mammogram appointment in March to my final chemo treatment in October. I had a small procedure that following January as well. There were so many highs and lows. I learned to appreciate the highs and overcome the lows.
- Finding out I had cancer was terrifying. I saw both parents suffer with cancer and saw it take my mother. I had bouts of sobbing to the point I didn’t think I could cry anymore. I was overwhelmed. I realized that I had to give into it, trust in my doctors and do whatever they were telling me to do in order to survive. I took it one day at a time, getting through an appointment, another biopsy, a scan, enduring all the never ending needles I hated getting every single time, waking up from surgery, walking for the first time after surgery, the first chemo treatment, my last chemo treatment, etc. were all little triumphs along the way.
- It was heartbreaking to hear that I would lose my hair. I always had beautiful hair and remember watching my dad lose his hair during chemo. It was so sad. I decided to do it in stages so I went to my hairdresser Carol, told her I had cancer and told her to give me a bob cut. The day I got my bob, I came home to find out my friend/neighbor Ani had cut her hair into a pixie as a show of support. It was such a show of love that still brings tears to my eyes. My niece Olivia cut off her hair and donated it to Locks of Love several times. I love her and it formed a bond between us that is so sweet. The terror came one day while I was in the shower and was rinsing off and felt something sliding down my leg and looked down to see a huge clump of hair in the tub and more in my hands. I just sobbed. The next day my hairdresser showed up at my front door with her clippers and a bottle of wine. My husband, my friend Eric, Ani & I sat in my kitchen and I quietly cried as I felt my hair fall to the ground as my hairdresser shaved my head. Honestly it only took me a minute to come to terms with it after shaving. I felt a sense of relief. One less thing to wash & I feel liberated and a tiny sense of control over this chemo.
- Because of the type of surgery (tram flap reconstruction) I received, I was in pain afterwards and I had drains in my breasts and abdomen area. I could not take a shower or wash my hair (when I still had it) because I had to keep the drain areas dry. My husband had to help me. I remember him washing my hair in the kitchen sink and then trying his best to blow-dry it. The concentration on his face was so sweet. I would cry every time because it was such an act of love. Sounds like such a simple thing but when your ability to bath yourself is taken away and you have to depend on someone else, it makes you appreciate things. He never complained and always did it willingly.
- All of the medical professionals I came in contact with did their best to provide as much information as they can about the effects of chemo but they can never truly prepare you for everything that it does to your body. Everyone handles it differently but for me:
- Hair loss EVERYHWERE! Head, eyebrows, eyelashes, nose hair, mustache (yay positive!), arms, armpit hair (another positive), pubic hair (like a 9 year old girl again), leg hair (no shaving). I would stand and look at myself naked in the mirror at all my surgery scars, bald everywhere and I’d say to my husband “I look so ugly. I look like an alien!” He assured me that I did not but I knew he was just being kind. So I got very good at applying makeup and painting on eyebrows/eye liner. I went for appointments to try on wigs in the beginning. My neighbor owns a Merle Norman’s in Flemington and my friend Lisa went with me to try them. It was like having a chia pet on my head. It wasn’t for me. I instead became a lover of hats. I received some from friends and found myself looking for them in every store I went into. I made it fun in coordinating them with my outfits. I felt people looking at me when I went out and at first it was uncomfortable but I got past it very quickly and would just smile. Once I accepted the hair loss, in the big scheme of it all, it really became an insignificant thing for me.
- Nausea was my enemy. I hate, hate, hate throwing up. The chemo leaves a metallic taste in your mouth and a constant sick feeling. Food that I normally loved now smelled and tasted weird and made me gag. I would chew and chew and just could not swallow it down. Ritz crackers became my friend and the wonderful cocktail of anti-nausea medicines that the nurses told me about really helped.
- My vision changed. My eyesight got blurry and I was very cautious about driving at night.
- The nails on my hands and feet became very brittle, brown, puss filled, cracked and ugly. Disgusting and embarrassing. I constantly put nail conditioner on them and wore something on my feet all the time.
- I developed neuropathy in my hands and feet. It was sometimes painful and uncomfortable. I still have problems with my feet to this day.
- My mouth started to get sores and I had to rinse my mouth with this rinse that looked like pepto but tasted bad.
- I had to use a netti pot all the time because my nose hair was gone and I had to keep my sinuses clear. Or snot would just drip out of my nose because there was no hair to stop it.
- The fatigue from chemo is debilitating. After my chemo sessions, I would come home and sleep for hours. I laid around a lot during those times and I felt guilty sometimes because I was very limited in what I could physically do.
- I remember one time in particular having an argument with my husband and I left the house upset, in my little bandana, on my way to an appointment. I stopped at the Shell station to get gas which also has a convenience store and a Dunkin Donuts. As I waited for my gas to pump I saw a man come out of the DD on the way to his vehicle. He walked past my car with his coffee. He stopped, looked at me, turned around and walked over to my car window. He said, “Hello miss. How are you? Do you mind if I say a prayer for you?” I was stunned but I told him that it is fine and he proceeded to do the sign of the cross and say a prayer asking God to take care me, to look after me, to take away my pain and sorrow. He prayed for God to take away any disease or sickness and to love me. He finished with the sign of the cross, touched my arm and said “God bless you miss” and walked away. Needless to say I was crying and I’m crying still to this day as I write this. It was one of the kindest things a stranger has ever done for me. I am not sure what prompted him to do it. Maybe it was the bandana but I truly believe he was an angel. I will never forget it and I regret that I never got this name.
A good support system is everything!
I have always been independent and had to do a lot for myself in life and I figured this would be the same. But I was wrong. I realized that I needed help and I allowed myself to accept it. I found out that some people, who I thought would support me, did not. And others, some unexpected and/or strangers, were kind beyond words. I think that some people just do not know how to handle disease/sickness, so they avoid it. They don’t know what to say, so they say nothing. Going through this helped me to be more compassionate and comfortable with others in this type of situation and it made me realize that accepting help is OK.
I was very fortunate to have had excellent medical professionals surrounding me and caring for me. All of them were recommended and the combination of doctors, surgeons, nurses, etc. were kind, compassionate, knowledgeable and made me feel that no matter how scared I was, no matter how many questions I asked, that they were there just for me. Each and every one of these angels was exactly what I needed. My surgeons assured me I would get through it and they would make me look as normal as possible. My results were amazing. I would say that my plastic surgeon earns every penny he makes and the chemo nurses are very underpaid. They work like dogs, are so kind and are a plethora of information that I tapped into. They all continue to be a great source of support when I go back for my follow-ups.
Linda and her chemo buddy Claudia
I found a lot of support in the other patients at the hospital that were going through chemo. I looked forward to seeing them every week and would spend my hours in the chemo recliner chatting about tips and catching up. I met one of my very good friends, Claudia at chemo. She finished her treatment before mine and I knew that we had to keep in touch. She is one of those people who I instantly connected with. I knew we’d be friends when I told her outright that when she dozed in the chemo chair that her mouth would fall open and she’d snort and I found that hysterical. So did she! We’ve been friends ever since and I feel love, a camaraderie and a close connection to this person who “gets it”.
My job was very supportive and allowed me any time I needed for appointments and treatment. My colleagues were amazing and followed up with me all the time.
My friends and family (mine and my husband’s) were great. Whether it was taking me to a chemo treatment, making me muffins, sending cards or a fruit basket, knitting a hat, watching TV, visiting, etc. they were a constant source of comfort, love and support.
And finally, my husband Tom. He is a person that suffers from constant pain due to nerve damage from an accident. It has always been about him, how he was feeling and what he needed. Now the tables had changed and I was the one that needed looking after. He was amazing. From the very beginning he did everything for me. He showed me compassion, he said and did the right things, held me when I sobbed, let me vent my fears, took me to every appointment, cooked for me, washed me, showed me love, and never, ever complained. I have never appreciated or loved him more than at that time. He took the vows of “in sickness and health” to heart and for that I am truly grateful.
Linda and her husband Tom
My Incredible Milestone
It is crazy to think that 5 years have passed. I feel lucky and I think I have been celebrating ever since. I always had this sense through it all that I was going to be OK, that I would come through. It makes me appreciate everything so much more. I was always a social person but now I want to experience more things, surround myself with good people and weed out the poison. I want to give back. I want to help others. I feel happy to be alive and look forward to the future.
I recently got my first tattoo. It is a picture of a cross with the pink cancer ribbon draped across it. I went with my good friend Kim who I always said she’d be the one that would go with me when I finally found something that had so much meaning that I would permanently tattoo my body with it. My next one will be the tree of life.
I had this perfect trip planned to go to Italy with my high school friend, Heidi when this shit cancer happened. Of course I had to cancel out of the trip and was heartbroken. But I always had my eye on the prize and I am planning a trip for next year with my friend Claudia to Italy or the Mediterranean because its one of those bucket list things I must do. She is the perfect person for it.
Paying it Forward
Babes for Boobies Avon Walk 2014
Since being diagnosed I have donated to the Cancer Center at Hunterdon Medical Center, bought the staff pizza, collected hats for the patients, I have done the Susan G. Komen walk several times, have volunteered and walked in fundraisers for Hunterdon Cancer Center, and most recently in October I did the Avon 2-day 39-mile walk in NY. The decision to do it was really a wine intoxicated decision! But I am so glad that I followed through. I did it because it’s a fundraiser for cancer and I want to contribute to knocking that shit out. But I also wanted to see what I was able to physically do. I went with my friends Patty, Lisa and Kellie and each of us had the connection of either losing someone to cancer or is a cancer survivor. We each had to raise a minimum of $1800 in order to walk and the team “Babes for Boobies” was born. We sent out numerous communication to friends, family and colleagues, did fundraisers and we were all able to raise the money and then some. Next to battling cancer, this is the hardest thing I had ever physically done. The first day was a full marathon and the second day was a ½ marathon. My first day I was able to accomplish 16 miles and the second day 4 miles because I was nearly crippled. I felt such a sense of pride as I walked through the pain and then finally walking across the finish line. The people I met, the ladies I walked with, everything, the whole experience, was amazing.
What I’ve learned…..
I realize that life can change in a split second. I realized who my true friends really are. And the ones that aren’t really my friends, well that’s ok and I have let go. I realize that I have one brother who loves me and one who could care less about me. I realize that I am resilient. I realized that people are very, very kind. I have become more spiritual and have felt loved ones who have passed on around me. I believe in angels. I have tried to incorporate peacefulness in my life such as yoga. I seek out fun, laughter, and good people. I always appreciate things but even more so now. I can find myself tearing up at the beauty of seeing the first robin of the season, or telling friends and family that I love them for no reason, or thanking them for a simple act of kindness. I want to become a better person. I want to leave this life feeling as though my time here mattered. I feel lucky that I had cancer because it made me who I am, a survivor.
Words of advice for people fighting right now
Believe that you will get through it. Trust the professionals but do your research and ask, ask, ask questions. Accept the fact that your body will change and do whatever you can to stay healthy. Accept help from others and express your appreciation. Chemotherapy sucks the life out of you but fight it and don’t let it beat you. Keep a journal, which will prove useful when you come out on the other side and read what you got through. Hair is really a non-issue and it will grow back. Don’t expect everyone to handle your cancer the way you would. Find that person who “gets” what you are experiencing and talk things out with them. Celebrate the little triumphs. And above all, survive!
Linda’s Breast Cancer SURVIVOR tattoo